The right to be forgotten for cancer patients: a moral issue of justice
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Keywords
cancer survivors, right to be forgotten, right to oblivion
Abstract
Cancer is a major cause of mortality worldwide, but therapeutic advancements have significantly increased the chances of recovery. However, cancer survivors often experience multidimensional frailty along with persistent social stigmatization. In this context, the right to be forgotten (RTBF) for cancer patients, as an essential protection against discrimination based on medical history, is an emerging and crucial issue in public health and bioethics. This article examines the ethical, social, and legal implications of the RTBF for cancer survivors, exploring the need for uniform regulations and the importance of social recognition of recovery. Through a literature review and critical analysis, the Authors propose guidelines for the implementation of policies that ensure full respect and operability of the ethical principles of equity, autonomy, and dignity for cancer patients.
References
2. Kocarnik JM, Compton K, et al. Global Burden of Disease 2019 Cancer Collaboration. Cancer Incidence, Mortality, Years of Life Lost, Years Lived With Disability, and Disability-Adjusted Life Years for 29 Cancer Groups From 2010 to 2019: A Systematic Analysis for the Global Burden of Disease Study 2019. JAMA Oncol 2022; 8(3):420–44.
3. Miller KD, Nogueira L, Devasia T, et al. Cancer treatment and survivorship statistics, 2022. CA A Cancer J Clin 2022; 72:409–36.
4. Depaoli F, Ciliberti R. From the treatment of breast cancer to the treatment of the woman with cancer: History of breast surgery and its prejudices. Acta Biomed 2024; 95(2):e2024083.
5. Scocca G, Meunier F. A RTBF for cancer survivors: A legal development expected to reflect the medical progress in the fight against cancer. J Cancer Policy 2020; 25:100246.
6. Vena JA, Copel LC. A concept analysis of remission within the domain of cancer survivorship. Nurs Forum 2021; 56(2):421–8.
7. Doyle N., Cancer survivorship: evolutionary concept analysis. J Adv Nurs 2008; 62:499–509.
8. European Commission. Europe's Beating Cancer Plan. Communication from the commission to the European Parliament and the Council. 2021. Available at: https://health.ec.europa.eu/system/files/2022-02/eu_cancer-plan_en_0.pdf
9. National Cancer Institute. SEER cancer statistics review (CSR) 1975–2016. Updated April 9, 2020. Available at: https://seer.cancer.gov/archive/csr/1975_2016/
10. Directive (EU) 2023/2225 of the European Parliament and of the Council of 18 October 2023 on credit agreements for consumers and repealing Directive 2008/48/EC. Available at: https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=CELEX:32023L2225
11. Directive (EU) 2014/17 of the European Parliament and of the Council of 4 February 2014 on credit agreements for consumers relating to residential immovable property and amending Directives 2008/48/EC and 2013/36/EU and Regulation (EU) N. 1093/2010.
12. Faccioli M, Il diritto all’oblio oncologico nella l. n. 193/2023: la via italiana alla tutela giuridica dei cancer survivors. BioLaw Journal 2024; (1):75–93.
13. Italian Council of State n. 09572 judgment of November 3, 2022. Available at: https://siulp.it/illegittima-lesclusione-dal-concorso-per-pregressa-patologia-oncologica/
14. Mezzanotte M. Brevi note in tema di diritto ad essere “medicalmente” dimenticato: il caso del diritto all’oblio oncologico. Consulta online 2023; II. Available at: https://giurcost.org/post/MASSIMILIANO%20MEZZANOTTE/22712
15. Morana D, La salute come diritto costituzionale. Lezioni. Torino: Giappichelli; 2021.
16. Boelhouwer IG, Vermeer W, van Vuuren T. Late effects of cancer (treatment) and work ability: guidance by managers and professionals. BMC Public Health 2021; 21(1255).
17. Benaroyo L, Responsibility and vulnerability: The resources of Emmanuel Levinas’ thought for the ethics of care. Teoria, Rivista di Filosofia 2023; 43(1):11–23.
18. 15th Report of the care condition of cancer patients, 2023. Available at: https://osservatorio.favo.it/quindicesimo-rapporto/indice/
19. 16th Report of the care condition of cacer patients, 2024. Avaibale at: https://osservatorio.favo.it/sedicesimo-rapporto/indice/
20. Lawler M, Meunier F. Don’t make cancer survivors pay twice-the right for them to be “forgotten” should be law everywhere. BMJ 2022; 378:o2197.
21. Europe’s Beating Cancer Pan: communication from the commission Avaibale at: https://health.ec.europa.eu/system/files/2022-02/eu_cancer-plan_en_0.pdf
22. Directive (EU) 2023/2225 of the European Parliament and of the Council of 18 October 2023 on credit agreements for consumers and repealing Directive 2008/48/EC. Available at: https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=CELEX:32023L2225
23. European Parliament resolution of 16 February 2022 on strengthening Europe in the fight against cancer - Towards a comprehensive and coordinated strategy. Avaible at: https://www.europarl.europa.eu/doceo/document/TA-9-2022-0038_IT.html
24. Italian Law 193 of 7 December 2023. Provisions for the Prevention of Discrimination and Protection of the Rights of Persons Affected by Oncological Diseases” (23G00206) . Official Gazette General Series n. 294 of 18-12-2023.
25. Bitetto A, Diritto all'oblio oncologico: meglio tardi?. Annali 2023; Available at: https://www.uniba.it/it/ricerca/dipartimenti/sistemi-giuridici-ed-economici/edizioni-digitali/gli-annali/annali-2023-1/2-bitetto.pdf
26. Gulino M, Patuzzo S, Baldelli I, et al. Bioethics in italian medical and healthcare education. A pilot study. Acta Biomed 2018; 89(4):519–31.
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