The "Doula" in accompanying the end-of-life

Main Article Content

Linda Alfano
Ivano Malcotti
Rosagemma Ciliberti

Keywords

Death doula, death, terminal assistance, end of life, health care assistant, accompanying death, mortuary rites, vulnerable people, rites of passage

Abstract

Since time immemorial, the occurrence of death and adjoined burial ceremonies have been at the core of critical anthropological challenges that have depicted and proved the social-cultural value of this topic moment throughout the ages.


Recently, several social factors, along with the development of biomedical techniques and the increasing medicalization of man in his life course, have changed the appearance of death.


In the industrialized and urbanized areas of contemporary society, death has progressively shed the 'naturalness' of a difficult moment that always has concerned the inner circle of family, to further has been frequently relegated to medical or, at least medicalized, context in which the demise takes place long gone from the gazes and affections of kin and beloved ones. Against a context in which the medical technique becomes increasingly intrusive, the innermost anguish of the dying individual is consumed: that of being abandoned to a solitary confrontation with life's most tormented event, at a time when according to medical science "there is nothing left to act”.


Therefore, these contingencies oblige contemporary bio-medical ethics to rethink the moral and accompanying rules at the end of life that validly regulated this arena in the past, but which at present appear outdated and insufficient. To this end, the authors analyze the figure of the "End-of-Life Doula", a figure who can intercept the social need revolving around the subject of death, by offering the dying person and family members support, comfort, and a meaningful response to the ordeal of death.

Abstract 90 | PDF Downloads 35

References

1. Binetti P, Bruni R. Il counseling in una prospettiva multimodale. Roma: Edizioni Scientifiche Ma.Gi. srl; 2003.
2. Jonas H. l principio di responsabilità. Un’etica per la civiltà tecnologica. Torino: Einaudi; 1990.
3. Elias N. La solitudine del morente. London: Bloomsbury Publishing; 2011.
4. Alfano L, Ciaccia R, Ciliberti R. Ethical and political issues in healthcare choices in the pandemic era: the right to visit hospitalized. Medicina Hist 2022; 6(3):e2022040.
5. De Hennezel M. La morte amica, lezioni di vita di chi sta per morire. Milano: Rizzoli; 1998.
6. Foucault M. Nascita della clinica. Einaudi: Torino; 1969:31.
7. Alici L. Filosofia della morte. (Edit by F. D’agostino, F Santeusanio) La dignità degli ultimi giorni. Cinisello Balsamo: San Paolo; 1998.
8. Van Gennep A. I riti di passaggio (Translated by M.L. Remotti). Torino: Bollati Boringhieri; 2012.
9. Remotti F. Prima lezione di antropologia. Bari: Laterza; 2000.
10. Aime M, Pietropolli Charmet G. La fatica di diventare grandi: la scomparsa dei riti di passaggio. Torino: Einaudi; 2015.
11. Hertz R. Sulla rappresentazione collettiva della morte (Translated by P. Angelini). Roma: Savelli; 1978.
12. Scheler M. Il dolore, la morte, l’immortalità. Torino: Elle Di Ci; 1983.
13. Raphael D. The Midwife as Doula: A Guide to mothering the mother. JMWH 1981; 26(6):1–46.
14. Steel A, Frawley J, Adams J, Diezel H. Trained or professional doulas in the support and care of pregnant and birthing women: a critical integrative review. Health Soc Care Community 2015; 23(3):225–41.
15. Ireland S, Montgomery-Andersen R, Geraghty S. Indigenous Doulas: A literature review exploring their role and practice in western maternity care. Midwifery 2019; 75:52–8.
16. Bohren MA, Hazfiarini A, Vazquez Corona M, Colomar M, De Mucio B, Tunçalp Ö, et al. From global recommendations to (in)action: A scoping review of the coverage of companion of choice for women during labour and birth. Glob. Public Health 2023; 3(2):e0001476.
17. Simonds W, Katz Rothman B, Meltzer Norman B. Laboring on. Birth in transition in the United States. New York, London: Routledge; 2007.
18. Benaglia B. La cura invisibile: potenzialità e limiti della pratica della doula. Antropologia e teatro 2020; 12:59–83.
19. Pasian P. La doula: l’emergere di una professione. Autonomie locali e servizi sociali 2015; 38(2):291–306.
20. Rawlings D, Davies G, Tieman J. Compassionate communities - What does this mean for roles such as a death doula in end-of-life care? Public Health 2021; 194:167–9.
21. Rawlings D, Tieman J, Miller-Lewis L, Swetenham K. What role do Death Doulas play in end-of-life care? A systematic review. Health Soc Care Community 2019;27(3):e82-e94
22. Morton CH, Seacrist,M, Torres J, Heidbreder N. Cultivating collaborative relationships in the provision of labour support: doulas and labour and delivery nurses. (Edit by AN Castañeda, JJ Searcy). Doulas and intimate labour: boundaries, bodies, and birth. Bradford: Demeter Press; 2015:170–85.
23. Patuzzo S, De Stefano F, Ciliberti R. The Italian code of medical deontology. Historical, ethical and legal issues. Acta Biomed 2018; 89(2):157–64.
24. Ciliberti R, Gulino M, Gorini I. New Italian law about end of life: Self-determination and shared care pathway. [La nuova normativa Italiana sul fine vita: L'autodeterminazione e la condivisione del percorso di cura]. Recenti Prog Med 2018; 109 (5): 267–71.
25. O'Rourke KM, Yelland J, Newton M, Shafiei T. An Australian doula program for socially disadvantaged women: Developing realist evaluation theories. Women Birth 2020; 33(5):e438-e446.
26. Rawlings D, Tieman J, Miller-Lewis L, Swetenham K. What role do Death Doulas play in end-of-life care? A systematic review. Health Soc Care Community. 2019 May;27(3):e82-e94.
27. Yoong SQ, Goh HS, Zhang H. Death doulas as supportive companions in end-of-life care: A scoping review. Palliat Med 2022;36(5):795–809.

Most read articles by the same author(s)

<< < 1 2 3 4 > >>